Rare Cancers Australia Ltd (RCA)
Effective Date: 27.8.2025
Scope of this Policy
This Privacy Policy applies to all personal and non-personal information collected by RCA, including data collected through our websites, mobile applications (including the Kosi App, developed in partnership with Funraisin), and any other RCA-related platforms or services.
Collection of personal information
RCA collects personal and health information from individuals for the purposes of support, awareness, advocacy, and fundraising.
- Information we may collect includes:
- Full name and contact details
- Email address and phone number
- Device and browser data
- Sensitive health information (when voluntarily provided)
- Activity data (steps, distance, calories, speed, and workouts)
- IP address and cookies (website usage)
Mobile App-Specific Data Collection (Kosi 2026 App):
When using the Kosi 2026 app developed by Funraisin, the following additional data may be collected:
- Push Notifications: For updates, app usage, and challenge milestones
- Background Device Location: To track start and end points (lat/long)
- Health Data: Distance, exercise time, speed, steps, calories, workouts, etc.
- Non-Personal Usage Data: Device type, OS version, app usage metrics
Use of collected information
Your information is used to:
- Provide personalised support and services
- Enable fundraising functionality and community engagement
- Track fitness activities linked to fundraising challenges
- Improve our apps and websites
- Communicate relevant updates and opportunities
- Comply with legal obligations
We only use personal information for the purpose for which it was collected or a related secondary purpose that you would expect.
Storage and security of information
RCA stores personal and health information securely. This includes:
- Password-protected access to electronic files
- Physically secure storage for hard copy records
- Firewalls and encryption protocols for digital platforms
- Secure app development protocols via our trusted partner, Funraisin
Disclosure of information
We do not disclose your personal information to third parties except in the following cases:
- You have provided consent
- Disclosure is required by law
- To a third-party service provider under a strict confidentiality agreement (e.g., Funraisin)
Cookies and website analytics
RCA websites use cookies to collect usage data such as:
- Visit duration and frequency
- Page views and downloads
- Returning visitors
- IP address and device type
Cookies help us improve website functionality and user experience. You can disable cookies in your browser settings.
App permissions and user Controls
Users have full control over:
- Enabling/disabling location tracking and push notifications
- Granting/revoking access to health data (Apple HealthKit, Google Fit)
- Updating their name within the app
Users can withdraw consent anytime via app/device settings or by contacting us directly.
Access and correction of personal information
You may access, update, or request deletion of your personal information by writing to:
Head of Operations
Rare Cancers Australia
PO Box 440, Bowral, NSW 2576
Email: contact@rarecancers.org.au
Phone: 02 4862 2768
Data retention and deletion
RCA only retains personal information for as long as necessary to fulfil its purposes or comply with legal obligations. Users may request data deletion at any time.
International data transfers
Where data is stored or processed outside of Australia, we ensure appropriate safeguards are in place consistent with Australian Privacy Principles and GDPR where applicable.
Policy updates
We may update this Privacy Policy from time to time. Updates will be published on our website and in our apps with the effective date stated.
Contact us
For any questions, concerns, or complaints regarding our privacy practices, please contact:
Head of Operations
Rare Cancers Australia
Email: contact@rarecancers.org.au
Phone: 02 4862 2768
Mail: PO Box 440, Bowral, NSW 2576
